Family vloggers
Sure thing: invacare is the company, the wheels are Alber e-motion M25. Their argument is the wheelchair is usable without the add ons, which I not only disagree with but why are these wheels 8k if they have an app only usable by upgrading? The older model is cheaper and doesn't have an app which works in the same way then.
I am curious if something will get out of this! It's difficult to explain but there's so many hoops I have to go through, I literally can't contact invacare myself. I have city council to grant me an indication of what I need, a company that delivers the stuff to me and does maintainance (but theyre extremely lacking), then there's a company that imports the invacare stuff and deals with the company that deals with me.
We truly need to get some hard rules down in the Netherlands. I'm tired of it all.
Yea the fun stuff is that it's actually manually operated but it straight up blocks at the 6km or the 8,5. The 8,5 is decent enough but even when turned off the wheels feel 'blocked' so I can't do a quick running contest with my husband. Not the wordt but at 6km it's just average walking speed which means I can't take a sprint when crossing the road.
Fun fact: it was stuck in 2,5km/h for months before I finally figured out the manufacturer manual because the actual wheelchair company didn't know how it worked.
And here I am in the Netherlands, taking trips to the Midwest sometimes and crying everytime because it's so accessible and the ADA and what not. All from a tourist perspective, which is just.... I can get into a restaurant and use the sidewalks.
I am blessed to have a ramp. And now I'm realizing I say blessed when we're just human beings living our regular human being lives trying to get out of our house. I hope the regression will be a slow one for you and remember: a wheelchair isn't something to be ashamed about. Ambulatory wheelchair users exist so if you feel like you can profit off of one, so you may take a longer hike in the mountains or whatever, don't feel ashamed.
It may shock you but: the Netherlands
I'm imagining your shock when I tell you the cost of my entire wheelchair, which is a manual wheelchair with push assistance (like an e-bike).
This is the play store link and honestly: wow. You offering to pay is making my head spin. That's incredibly kind of you. However I truly don't want to buy it overall since it's tied to the wheels, which I don't own, and I might get other wheels in 5 years and then... I can start over. It's the principal that I get a device with "cruise control" so I can cover more distance on my own but then the cruise control alone costs 100 bucks.
I'm in a country where people assume disabled people are taken care of. Quite the opposite.
Thank you for the detailed reply! Details:
- Android (pixel 8)
- play store link
- When buying the pack, the functions are tied to the wheels itself so not a google or other account
I did find the mechanic manual a few years back so I could get into the "professionals only" menu and I was able to tweak the push sensitivity which my provider couldn't figure out ironically. The packs however are a different add-on. The only thing I can find online are people asking if it's worth the money, or people who bought it. Not really a popular hacking device it seems.
It sucks that I'm not technical enough to open up the wheels - i also find it a bit scary since I literally need this thing everyday and my provider is already neglecting their customers.
Capitalism thrives off mobility aids. Anything decent, even a decent backpack, cost an arm and a leg just because it's made for the cripples. I hate it here lol.
cries in women's pants
I find it sad for all the useful information on that website ( which, if you come across, do repost it on a lemmy community! ) and the subreddits dedicated to helping others out. It would be great if we could build that on the fediverse, but I can imagine wanting to reach as many people as possible when you're helping out veterans for example.
Fun fact: I tried looking up things about cerebral palsy and got warned about illegal activity. Was confused for a while.