68
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
this post was submitted on 02 Jun 2024
68 points (93.6% liked)
Ask Science
8471 readers
109 users here now
Ask a science question, get a science answer.
Community Rules
Rule 1: Be respectful and inclusive.
Treat others with respect, and maintain a positive atmosphere.
Rule 2: No harassment, hate speech, bigotry, or trolling.
Avoid any form of harassment, hate speech, bigotry, or offensive behavior.
Rule 3: Engage in constructive discussions.
Contribute to meaningful and constructive discussions that enhance scientific understanding.
Rule 4: No AI-generated answers.
Strictly prohibit the use of AI-generated answers. Providing answers generated by AI systems is not allowed and may result in a ban.
Rule 5: Follow guidelines and moderators' instructions.
Adhere to community guidelines and comply with instructions given by moderators.
Rule 6: Use appropriate language and tone.
Communicate using suitable language and maintain a professional and respectful tone.
Rule 7: Report violations.
Report any violations of the community rules to the moderators for appropriate action.
Rule 8: Foster a continuous learning environment.
Encourage a continuous learning environment where members can share knowledge and engage in scientific discussions.
Rule 9: Source required for answers.
Provide credible sources for answers. Failure to include a source may result in the removal of the answer to ensure information reliability.
By adhering to these rules, we create a welcoming and informative environment where science-related questions receive accurate and credible answers. Thank you for your cooperation in making the Ask Science community a valuable resource for scientific knowledge.
We retain the discretion to modify the rules as we deem necessary.
founded 1 year ago
MODERATORS
Thank you so much for the detailed response, I really appreciate it. Over the years I've looked into this a lot but you've given me some really useful new information!
Health care in the UK, especially for lesser known genetic diseases, can be a bit of a lottery... I moved up the country 6 months ago, and within a month had been tested & diagnosed for a generic mutation called FMF (familial Mediterranean fever). My dad / sister both have it but despite nearly a decade of requests I was unable to get a doc to investigate it. So far up here the gp response has been a referral to a website for cognitive behavioural therapy.
I'll push on though and see if there's anything more they can investigate. Thanks again for the info :)