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My child was just diagnosed with being on the spectrum. Having no personal experience or information about it, I am looking to better educate myself in order to be a better advocate for my son. I realize there is a lot of disinformation out there, so where is a good place to start? I know this is a really big question but anything helps.

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[-] FBJimmy@lemmus.org 2 points 1 month ago

As someone with a number of friends, family and colleagues on the spectrum, and a wife who works in SEN, I would say the best source of knowledge would be to seek out people with first hand experience to talk to.

There are books with people's lived experiences that might be helpful too - I'm actually currently reading "Secrets of the Autistic Millionaire" by David Plumber.

Finally, sounds silly, but there are some fairly meme-y groups on here that can still offer insight, e.g. autisticandadhd@lemmy.world

[-] TehPers@beehaw.org 1 points 1 month ago

Same situation for me (lots of family and friends who have autism), and I agree. Talk to people with autism. They will be your best source of real information.

Also, everyone has different needs, and autism differs quite a bit between male and female, so try to get a wide range of experiences.

It also helps to consider what level your kid was diagnosed at because the needs for a nonverbal L3 are very different from a L1.

[-] SweetCitrusBuzz@beehaw.org 1 points 1 month ago

The youtube channels: Yo Samdy Sam, Purple Ella and Agony Autie are good.

[-] rimu@piefed.social 0 points 1 month ago

Your nearest public library will have lots of books.

[-] FBJimmy@lemmus.org 2 points 1 month ago

...but beware of older literature... We understand a lot more now than we did even 10-20 years ago.

this post was submitted on 12 Sep 2025
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