643
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
this post was submitted on 04 Jan 2024
643 points (98.3% liked)
World News
39104 readers
1108 users here now
A community for discussing events around the World
Rules:
-
Rule 1: posts have the following requirements:
- Post news articles only
- Video links are NOT articles and will be removed.
- Title must match the article headline
- Not United States Internal News
- Recent (Past 30 Days)
- Screenshots/links to other social media sites (Twitter/X/Facebook/Youtube/reddit, etc.) are explicitly forbidden, as are link shorteners.
-
Rule 2: Do not copy the entire article into your post. The key points in 1-2 paragraphs is allowed (even encouraged!), but large segments of articles posted in the body will result in the post being removed. If you have to stop and think "Is this fair use?", it probably isn't. Archive links, especially the ones created on link submission, are absolutely allowed but those that avoid paywalls are not.
-
Rule 3: Opinions articles, or Articles based on misinformation/propaganda may be removed. Sources that have a Low or Very Low factual reporting rating or MBFC Credibility Rating may be removed.
-
Rule 4: Posts or comments that are homophobic, transphobic, racist, sexist, anti-religious, or ableist will be removed. “Ironic” prejudice is just prejudiced.
-
Posts and comments must abide by the lemmy.world terms of service UPDATED AS OF 10/19
-
Rule 5: Keep it civil. It's OK to say the subject of an article is behaving like a (pejorative, pejorative). It's NOT OK to say another USER is (pejorative). Strong language is fine, just not directed at other members. Engage in good-faith and with respect! This includes accusing another user of being a bot or paid actor. Trolling is uncivil and is grounds for removal and/or a community ban.
Similarly, if you see posts along these lines, do not engage. Report them, block them, and live a happier life than they do. We see too many slapfights that boil down to "Mom! He's bugging me!" and "I'm not touching you!" Going forward, slapfights will result in removed comments and temp bans to cool off.
-
Rule 6: Memes, spam, other low effort posting, reposts, misinformation, advocating violence, off-topic, trolling, offensive, regarding the moderators or meta in content may be removed at any time.
-
Rule 7: We didn't USED to need a rule about how many posts one could make in a day, then someone posted NINETEEN articles in a single day. Not comments, FULL ARTICLES. If you're posting more than say, 10 or so, consider going outside and touching grass. We reserve the right to limit over-posting so a single user does not dominate the front page.
We ask that the users report any comment or post that violate the rules, to use critical thinking when reading, posting or commenting. Users that post off-topic spam, advocate violence, have multiple comments or posts removed, weaponize reports or violate the code of conduct will be banned.
All posts and comments will be reviewed on a case-by-case basis. This means that some content that violates the rules may be allowed, while other content that does not violate the rules may be removed. The moderators retain the right to remove any content and ban users.
Lemmy World Partners
News !news@lemmy.world
Politics !politics@lemmy.world
World Politics !globalpolitics@lemmy.world
Recommendations
For Firefox users, there is media bias / propaganda / fact check plugin.
https://addons.mozilla.org/en-US/firefox/addon/media-bias-fact-check/
- Consider including the article’s mediabiasfactcheck.com/ link
founded 1 year ago
MODERATORS
Don't worry, a key part of toxicity is the dosage. If you're following a prescription from an actual doctor instead of taking handfuls of horse medication at the behest of extremist politicians you're fine.
I followed my doctors advice (400mg daily for 15 years) and got retinol toxicity anyway. Now I have permanent damage to my macular, can’t take hydroxychloroquine anymore and my lupus is raging. It’s a fantastic drug, and blindness is a very very rare side effect, but for god’s sake insist on being monitored by an ophthalmologist. Current UK recommendations are an eye check before starting the medication, repeated after 5 years and then every year after that. I should have been checked 10 times in 15 years, I was checked twice.
Why weren't you getting an eye exam every year as a standard?
I'm in the US and once a year is pretty standard. Why would you only go to the eye doctor twice in 15 years? Do you not have regular eye exams as the norm?
TL;DR: most people in the UK don’t ever see an eye doctor until they get cataracts or similar in old age. Yearly opticians appointments are normal for people who need glasses - but the tests aren’t to the standard needed for those on hydroxychloroquine. I should have seen an ophthalmologist at least 11 times in the last 15 years instead of twice, but I “fell through the gaps”.
In the UK regular “eye exams” are called eye tests and are not covered by the NHS for most adults (unless you’re very poor and even then it’s still not free, you just get a voucher towards your glasses). Eye tests are done by optometrists (not doctors) mainly in corporate owned businesses like Boots or Vision express. I’ve been short sighted since childhood and have had eye tests done at boots at least every other year, if not yearly. Until last year, there was nothing to report.
But eye tests done at the opticians are not the same as in-depth as the tests an ophthalmologist at an eye hospital does. Until very recently (post pandemic) Boots didn’t have the capability to do OCT scans. Even when they got the capability, they wanted to charge an extra £25 for the privilege. In my case the waved the £25 fee (handy, I couldn’t afford it) because they could see there was a problem. They were meant to refer me to the eye hospital for urgent review but they “lost” my referral and didn’t inform my doctor of the problem. I continued taking hydroxychloroquine for 7 months because of their error, with the toxicity ever increasing. Eventually I was seen at the eye hospital and the damage was confirmed. I’m now seen there every 4 months. The can’t reverse the damage and it may continue to worsen even though I no longer take hydroxychloroquine.
As you pointed out, I should have been referred by my rheumatologist to an ophthalmologist at the eye hospital for yearly checks after my 5th year of taking hydroxychloroquine. For whatever reason I wasn’t. They blamed the pandemic in part, but they missed 10 years, it’s not all Covid’s fault. They did apologise unreservedly though.
So I didn’t know I needed to be under the care of the eye hospital, no one involved in my care including consultants, nurses, GP, pharmacists or my opticians told me I should be under the care of the eye hospital, or spotted the fact no one was monitoring me. When I first told my consultant he couldn’t believe it was down to the hydroxychloroquine until it was confirmed, because in 35 years of practice he’s never seen hydroxychloroquine toxicity before.
So I slipped through a crack. I considered suing both boots and the NHS for medical negligence, but it felt wrong. Instead I settled for an apology and a new warning that pops up for every patient on long term hydroxychloroquine when their medical records are accessed. Hopefully that will prevent anyone else from “falling through the cracks” again.
Ivermectin was the horse medication.