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submitted 9 months ago* (last edited 9 months ago) by FlyingSquid@lemmy.world to c/casualconversation@lemmy.world

Before I begin- Again, please no medical advice or suggestions. I am going to the Mayo Clinic in March and I will get their advice and I am just going to ignore any medical advice posted, sorry. Please no pity party either, I'm just angry and need a a place to rant and vent, that's it. Feel free to ignore this post and move on.

So... starting in about January of 2023, I started dry heaving almost every morning and this has happened ever since. Nothing has ever come up. Within five minutes of getting up in the morning, I dry heave. Sometimes once, but sometimes a few times.

In March, I stopped eating for six weeks. It's not like I'm too nauseated to eat or I feel too full to eat, I just do not want to eat. Period. I've explained it to others like this- would you be able to eat a turd? No. That's how all solid food feels like to me. I can't even force myself. It's a total aversion to food. Even the smells of food can trigger it, especially savory smells like onions, cooked meat or cheese (meaning I hide in my office in the garage when my wife and daughter have pizza). My current doctor has described it as anorexia but with a physical cause.

I went to urgent care, they told me to go to the ER because they couldn't give me the diagnostics I would need. I went to the ER. They gave me X-rays, they took labs, and they did a couple of other tests I can't remember now and sent it all to my doctor (who I've since gotten rid of because she was worthless). She told me there were no results, but to be sure I also needed a CT scan, and my insurance wouldn't let me go to a private facility, so my only option to get it quickly was to go back to the ER the next day and get one. Incidentally, the first day was an 8-hour visit and the second day was a 6-hour visit. Hooray American healthcare system.

I got prescribed various anti-nausea medications, which were of no help because I had no nausea. I ended up living on Ensure and Gatorade.

Anyway, by mid-April, I was eating again. It just suddenly happened. I felt like eating, ate some crackers, and I was fine with an appetite again. I still heaved every day, but I was fine.

I also had to do a colonoscopy the next month, and just to be sure, I scheduled an EGD where they check your stomach as well. They found an ulcer. Finally, an answer! Nope. They did another EGD six weeks later, the ulcer was gone and I was still heaving.

No one knew what was wrong, of course, but it seemed less urgent. I scheduled a bunch of tests and, since this is the U.S., they were scheduled for months later and the summer started.

Then, in August, on the morning of August 20th, it all changed. I got up, ate some cereal, and that was the last thing I ever ate so far.

Back to the doctors it was! This time, I got a head MRI in case it was neurological, as I do have a rare nerve disorder as well (trigeminal neuralgia) because I won the fucking genetic lottery. Nope, MRI showed nothing. My neurologist actually said my brain was the most healthy she'd seen in a while. So that didn't work.

I couldn't keep taking time off of work, so I took FMLA, a law that allows you to take up to 12 weeks off, unpaid, for health reasons and have a guaranteed job you could come back to. It is actually paid for bigger companies, but if a company has under 50 employees, which mine did, no pay.

12 weeks went by and I just had to end up quitting. What else could I do? I was glad because I hated that job and I was able to put my very bullied daughter into online school and supervise her, so there were good sides, but we're down to a single income now with ever-mounting medical debt despite having "good" insurance.

Anyway, back to the medical situation! I had a HIDA scan. That tests for gallbladder issues. The HIDA scan suggested that might be a problem. So, again, hey, a solution! I had my gallbladder out just before Christmas. It's a simple surgery and you can recover from it with almost no trouble because the gallbladder can be removed like the appendix. I was hoping I'd wake up hungry. No such luck and my gallbladder was healthy.

At this point, most of the doctors basically threw up their hands and said they didn't know what to do and I applied to go to the Mayo Clinic. For those of you unfamiliar, it's one of the best hospitals in the country and it specializes in cases no one can figure out. Sort of a real-life House situation except with lots of doctors instead of one asshole. They accepted me and I go on March 22nd. I was going to have to do a GoFundMe for the trip, but my 81-year-old mother, who is relatively well-off, said she would go with me to be an advocate and take notes and also pay for an AirBnB. I don't really want to drive 8 hours up to Minnesota with a semi-crazy old lady, but at least I'm saving money.

Obviously, it's been very hard on my family. On top of general worrying about me, I can't go out to eat with my wife and daughter because I'm concerned I won't be able to handle a restaurant's smell. I can't even get them fast food. My daughter wanted a meatball sub and I had to tell her I couldn't get it for her because I couldn't handle going inside and I couldn't handle the smell as she drove it home (my wife got it for her later, but I hate telling her I can't get her food). On top of that, I have to request they turn the kitchen fan on when they eat or I won't be able to come back into the house. I usually go to my mother-in-laws' house on Christmas, but I couldn't because there would be a whole bunch of food there.

I wish I could eat. So badly. For so many reasons. I keep seeing food ads and think of how good it would be to have them (in an abstract sense, I wouldn't be able to eat them if they were in front of me). A Nepali restaurant opened in town. I have never had Nepali food, but I love Indian food and I love Tibetan food and Nepal is between them. I drive by it all the time wishing I could have just a tiny bit.

The weirdest part? I feel fine almost all the time. I have very little energy obviously (I do try to exercise), and there's the heaving part, but I don't really feel sick most of the time. Also, I can brag that for the first time in my life I'm just 5 pounds above my BMI ideal weight of 180 pounds. Before I got sick, I weighed 260 pounds. Also, I don't have high cholesterol or high blood pressure anymore, so I guess there's a silver lining? Buying a whole bunch of new pants because none of the old ones fit anymore kind of sucked though.

Anyway, that's my story. It's six months since I've eaten today. My "diet" consists of- Tea in the morning, Ensure four times a day for the nutrition, Gatorade twice a day for the electrolytes, V8 twice a day for the fiber (I have to drink it while holding my nose), and as a treat, either root beer at home or a chai latte out somewhere. Also, I might have gotten the order of things wrong, sorry. There's been so much that I've had to go through.

Six months. I'm going to celebrate by not eating some cake.

Edit: Hooray having a terrible memory too, my mother reminded me this morning that I go on March 26th.

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[-] thefartographer@lemm.ee 36 points 9 months ago

Good job getting an appointment with Mayo Clinic! I know this has been really tough for you and I hope you get some good answers. I also look forward to hearing about your progress.

I'd also like to take a moment to appreciate the fact that you're going to the Mayo Clinic for your issues with food. If the universe is paying attention, you'll hopefully somehow cross paths with Dr. Burger or Dr. Ham.

[-] FlyingSquid@lemmy.world 21 points 9 months ago

That's great! We had a Dr. Slaughter and a Dr. Nice at the hospital in the town where I grew up. There was also an allergist named Dr. Ruff. Dr. Ruff was really, really nice as was Dr. Slaughter. Dr. Nice was not all that nice.

There was also an optometrist named Steven I. Ball.

[-] spittingimage@lemmy.world 7 points 9 months ago

Was Dr Slaughter a paediatrician? If so, we may have the same home town. There was also a Dr Blood (oncologist) and Dr Bones (psychologist).

[-] FlyingSquid@lemmy.world 11 points 9 months ago

I only saw him in the ER, but he might have done pediatrics. I don't mind telling people where I grew up, it's not really doxxing myself. Bloomington, Indiana.

[-] spittingimage@lemmy.world 11 points 9 months ago

That means there's two Dr Slaughters. I'm in Auckland, New Zealand.

[-] FlyingSquid@lemmy.world 15 points 9 months ago

I guess the Slaughter family is spread out across the world but maintains an interest in medicine.

[-] ChaosCoati@midwest.social 4 points 9 months ago

I’ve met a gastroenterologist named Dr. Brown

[-] volvoxvsmarla@lemm.ee 2 points 8 months ago

This sounds made up, but even if it was, I wouldn't mind, it's too great

Also, get well soon!

[-] FlyingSquid@lemmy.world 2 points 8 months ago* (last edited 8 months ago)

Thank you, and I swear it isn't.

In fact, I can offer some proof from some posts I made on another forum, although it also shows that I got the order and details of stuff happening all screwed up in lots of ways. Like I thought I stopped eating for 6 weeks in March. Apparently it was 21 days. Oops. It's been a long year. I'm glad my wife has all this stuff written down or I'd be fucked.

So I’m not eating again. Haven’t eaten since Tuesday morning. Going to the gastro doc on Monday. It’s going to be a long weekend.

https://forums.mst3k.com/t/whats-your-problem-a-thread-for-griping-part-2/28111/889?u=flyingsquid

So I went to the gastro doc today. Same doc that did my scope and found my ulcer. He didn’t remember, but I’m sure he does a lot of them. However, he didn’t seem to care that I wasn’t eating. He told me to keep taking my medication with food, even though I told him more than once that I wasn’t eating and add 15 ml of Mylanta every morning, then call him in 2 weeks if I’m not better.

2 weeks more not eating will tie my last record I guess.

https://forums.mst3k.com/t/whats-your-problem-a-thread-for-griping-part-2/28111/989?u=flyingsquid

So… day 20 of me not eating. 21 was the length last time. I’m surviving on ensure and gatorade. I get to call my doctor today to tell them nothing has changed and I’d really like a solution before I starve to death.

https://forums.mst3k.com/t/whats-your-problem-a-thread-for-griping-part-2/28111/1344?u=flyingsquid

Etc.

[-] volvoxvsmarla@lemm.ee 3 points 8 months ago

Just to be clear - the names of the doctors sounded made up, not your condition!

[-] FlyingSquid@lemmy.world 2 points 8 months ago
this post was submitted on 20 Feb 2024
156 points (86.1% liked)

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