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submitted 5 months ago* (last edited 5 months ago) by areyouevenreal@lemm.ee to c/adhd@lemmy.world

First off I am in England in the UK, so that's the medical system I would probably be using.

I've had significant issues with executive function throughout my life, but especially in the last two years of my integrated masters degree. This includes organization, as well as staying focused. I've had issues with losing things, multitasking, procrastinating, racing thoughts, and other issues in the other areas of life as well. I am thinking of going back to do a PhD or starting my first full time job, and am worried that I will really struggle this time.

I got a diagnosis of Asperger's before you could officially have a dual diagnosis under the DSM. So even though some of initial paperwork said I had significant evidence of ADHD, I couldn't actually be diagnosed with both so I guess Asperger's took precedence. This all happened when I was like 4 or 5 years old.

I am thinking medications or maybe therapy might be helpful, but I don't know if I need the second diagnosis to get those. From what I understand the NHS (UK public health system) has long wait times, and going private might be expensive. Additionally going to a psychologist, and talking about stuff with my family seems scary.

Additionally I have issues with sleeping and waking that probably won't help get all of this organized, and I probably need to get this addressed too. I understand that both ASD and ADHD can cause sleep issues, so maybe getting treatment for those would help.

Sorry for the long post. I hope this is also the right community for this as I wasn't sure where to post this.

Edit: I also have hyperfixation/hyperfocus/special interests out the waazoo, but I didn't know if this was relevant as that's also a part of having autism.

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[-] doo@sh.itjust.works 19 points 5 months ago

I have both and I think it's better to know, independent of the outcome.

[-] areyouevenreal@lemm.ee 5 points 5 months ago

Yeah this makes a fair bit of sense. At least then it would be less confusing and I wouldn't have to worry about it quite so much.

How difficult is it to get diagnosed as an adult though? Since the last time I got a diagnosis was when I was small I don't really know the process.

[-] Lhianna@feddit.de 5 points 5 months ago

Personal experience from Germany but also heard from others in the UK: it's easier to get an ADHD diagnosis as an adult than an ASD diagnosis as an adult.

[-] Fiivemacs@lemmy.ca 2 points 5 months ago

Does getting diagnosed even do anything other then knowing what you already know?

[-] Kolanaki@yiffit.net 4 points 5 months ago* (last edited 5 months ago)

They can prescribe you medicine better. It is also necessary for disability (which autism and ADHD qualify as) to actually have a diagnosis.

[-] Lhianna@feddit.de 2 points 5 months ago

For ADHD it means you can try medication to help you. For ASD it wouldn't change anything for me personally so I'm not going to bother.

[-] Fiivemacs@lemmy.ca 0 points 5 months ago

But there is no testing for ADHD. It's just someone agreeing that they also think you have it.

[-] Senal@programming.dev 1 points 5 months ago

There are officially recognised tests that potentially lead to officially recognised diagnoses. For ADHD specifically that can lead to access to medication you wouldn't have without the official diagnosis.

[-] Fiivemacs@lemmy.ca 1 points 5 months ago

Must be just Canada then, but my doctor didn't give a flying shit about diagnosing ADHD. Stated it was clinical and if you feel you have it, good chance you got it. Just threw random steroids at me until something clicked.

[-] Lhianna@feddit.de 1 points 5 months ago

Steroids? I've never heard of those being a treatment for ADHD

[-] richard3030@lemmy.one 2 points 5 months ago* (last edited 5 months ago)

Can confirm, they are not. I assume they meant stimulants? I assume "threw random ... at me" also actually means "systematically trialled a series of medications until one was found to be sufficiently effective with minimal side effects".

[-] Lhianna@feddit.de 1 points 5 months ago

Well, I had to go through excessive tests, including blood work and EEG.

[-] Fiivemacs@lemmy.ca 1 points 5 months ago

I can see EEG being something valid, blood tests just seem like body baseline and would have zero bearing on a clinical evaluation.

Either way, glad you had it addressed

[-] Lhianna@feddit.de 2 points 5 months ago

Blood tests help to exclude other reasons for symptoms so they absolutely have bearing.

[-] areyouevenreal@lemm.ee 1 points 5 months ago

I would have no idea what the ASD process for an adult is like, mine was upgraded(?) from the Asperger's syndrome diagnosis I got as a child when medical terminology shifted. Is it difficult?

[-] Lhianna@feddit.de 1 points 5 months ago

Well, last time I checked they said it would take 3-5 years waiting time to get an appointment, recently I learned they don't even have an open waiting list right now.

[-] areyouevenreal@lemm.ee 1 points 5 months ago

Yikes. I don't think I have ever been so glad to already have an autism diagnosis.

What is the wait time like for ADHD?

[-] Senal@programming.dev 1 points 5 months ago

Same, they are currently still working through the 2019 backlog.

There is the option of going through "Right To Choose" system, which is ostensibly quicker but i think you have to pay for things yourself.

GP or doctor can give you proper advice about that though.

[-] Gormadt@lemmy.blahaj.zone 8 points 5 months ago

Getting the diagnosis could open up treatment options for ADHD that could make dealing with other aspects of life easier overall

[-] Routhinator@startrek.website 2 points 4 months ago

This. ADHD can be medicated and trust me, its easier to deal with less of your symptoms than trying to live with them all at once.

[-] clockwork_octopus@lemmy.world 5 points 5 months ago

I mean, they’re two different things, so I would think a separate diagnosis wouldn’t hurt.

On a side note, my therapist told me that she has never met or worked with a single ASD patient who wasn’t also ADHD, so take from that what you will.

[-] rowinxavier@lemmy.world 2 points 3 months ago

ADHD and ASD are commonly comorbid diagnoses. If you have an ASD diagnosis you are more likely than the average person to also have ADHD, and visa versa.

A good way to see it is ADHD, ASD, and a few other things are on a spectrum together. Various factors drive which features present at a given level and particular patterns are groups together because the are common, but your specific configuration is different to mine. Mine is ADHD with ASD as a more minor but definitely present thing, but my partner is the inverse, much more ASD than ADHD but definitely both.

this post was submitted on 09 Jun 2024
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