overview for breeze

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 3 points 8 months ago

Considered that, but I got tight budgets to run around. I want to avoid spending more than I should. But thank you.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 3 points 8 months ago

Yes, I read about the recalls. In fact the local distributor that used to deal with Phillips had stopped doing it for the same reason. Thanks for the warning.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 7 points 8 months ago

Too expensive. There's an import tax I have to pay if I ordered anything abroad, and the devices price in general are high enough to hurt my wallets even more. Older brands can't be acquired from stores, and "not supported" if I bought a used one, I was told.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 3 points 8 months ago

How have been your experiences dealing with the provider? From what I've been asking, the provider "offers" the cloud or report-generating function for the duration of device's warranty. That means acquiring used devices are out of question, at least officially speaking.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 3 points 8 months ago

I was considering a BMC, but still asking providers. And thank you for the program's name - I knew there were more people like us.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 6 points 8 months ago

Just like the other commenter, thank you for the link. I should find one of the models available listed in there.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 5 points 8 months ago

Don't you have better things to do instead of jerking each other off in a post you sure don't even care about?

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 4 points 8 months ago

That's right. I will email the doctor and ask if any other patients have expressed concerns about it.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 6 points 8 months ago

Also the idea of privacy while posting to a public forum. Er but by the grace of god go I.

Sure, dude. I'm soooo sorry because I'm asking questions about privacy on a privacy community.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 5 points 8 months ago

So what? I post concerns about user privacy on a privacy forum and this is what I get? A gatekeeping comment about how my concerns are overblown? Way to promote the platform.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 7 points 8 months ago

Thank you. I asked some acquaintances in health industry and received similar answers.

Medical devices and user privacy by breeze in c/privacy@lemmy.ml

[-] breeze@lemdro.id 9 points 8 months ago

Considering that, but the doctor needs the report so my condition can be treated in a proper way. I need to contact more distributors and see if there are any "customer privacy conscious" kind, but I'm not getting my hopes up.

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Medical devices and user privacy (lemdro.id)

submitted 8 months ago* (last edited 8 months ago) by breeze@lemdro.id to c/privacy@lemmy.ml

43 comments fedilink

(edit: removed redundant rants and added updates)

I recently got diagnosed with a condition (sleep apnea) which means I need to use a machine (CPAP) to have a proper sleep, probably for the rest of my life. The doctor wanted me use the device for a few months, and bring the "report" generated by the device to monitor my progress and discuss further treatment.

I thought it would be a simple task, like using a program or accessing a local network service like a printer would and download a file. However, as I consulted to the device distributors in my area... their sales pitch (disregarding the actual medical functions) were:

A) The machine is constantly connected via wi-fi or cellular to manufacturer's server, and user downloads the report via manufacturer's website or an app.

B) The machine has an SD card slot to which data is copied, but user have to bring its contents to the authorized distributor so they can convert them into a report file.

TL;DR: Very unsatisfied with either options. I never asked for this.

Update #1: For the reports, there's a program called OSCAR (www.sleepfiles.com/OSCAR/) that supports conversion of SD card data. Check device compatibility first. For sleep apnea related discussion, there is a forum (www.apneaboard.com) dedicated to it.

Update #2: From all the available brands, I'm inclined to buy a Chinese brand (Yuwell) simply because of costs alone, even if it is not supported by OSCAR. I see a lot of people recommending ResMed (which has OSCAR support) both online and offline, but the cost is prohibitively expensive for someone in my financial situation with local market prices. Still have to think about it.

Update #3: There's an asshole in the comments arguing "what's so special" about sleep related statistics being copied around. I concern was how those statistics get associated with customer identification (metadata) as distributors often do. Anyways, won't waste my time with the "got nothing to hide" type of dumbfucks.