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In autumn 2023, a hacker called Golem posted on a well-known message board for cybercriminals, announcing a trove of data stolen from 23andMe, one of the biggest names in at-home DNA testing. The company later acknowledged that the hacker had gained access to personal information in 6.9 million of its users' profiles.

It seemed to be an ethnically targeted attack: Golem boasted about having access to the accounts of people of Ashkenazi Jewish heritage who had sent their DNA to 23andMe, and offered to sell it to whoever was prepared to pay. News began to circulate suggesting the data breach on Friday 6 October 2023 may have even had antisemitic motivations.

A post purportedly from Golem offered for sale "tailored ethnic groupings, individualized data sets, pinpointed origin estimations, haplogroup details, phenotype information, photographs, links to hundreds of potential relatives, and, most crucially, raw data profiles".

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"Developed countries were hoarding vaccines and using the power of intellectual property law as a tool to ensure that they would continue to offer access to their own," says Faith Majekolagbe of the University of Alberta's Faculty of Law.

In a recent paper that contributes to the debate, published in the Australian Journal of Human Rights, Majekolagbe argues that international human rights law needs stronger teeth in the face of well-established protections for intellectual property. Otherwise, nations without timely access to a vaccine will once again suffer disproportionate harm.

We also now know that allowing a virus to run rampant in any population is short-sighted, giving it a better chance of mutating and endangering us all.

"The pandemic precipitated and exacerbated an existing but largely unresolved tension between the role of intellectual property protection in incentivizing innovation and the need to facilitate access to innovative goods on equitable and affordable terms," write Majekolagbe and her co-author, Tolulope Anthony Adekola of the University of Queensland.

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(emphasis mine)

If you visit a doctor virtually through a commercial app, the information you submit in the app could be used to promote a particular drug or service, says the leader of a new Canadian study involving industry insiders.

The industry insiders "were concerned that care might not be designed to be the best care for patients, but rather might be designed to increase uptake of the drug or vaccine to meet the pharmaceutical company objectives," said Dr. Sheryl Spithoff, a physician and scientist at Women's College Hospital in Toronto.

Virtual care took off as a convenient way to access health care during the COVID-19 pandemic, allowing patients to consult with a doctor by videoconference, phone call or text.

But the study's researchers and others who work in the medical field have raised concerns that some virtual care companies aren't adequately protecting patients' private health information from being used by drug companies and shared with third parties that want to market products and services.

Spithoff co-authored the study in this week's BMJ Open, based on interviews with 18 individuals employed or affiliated with the Canadian virtual care industry between October 2021 and January 2022. The researchers also analyzed 31 privacy documents from the websites of more than a dozen companies.

The for-profit virtual care industry valued patient data and "appears to view data as a revenue stream," the researchers found.

One employee with a virtual care platform told the researchers that the platform, "at the behest of the pharmaceutical company, would conduct 'A/B testing' by putting out a new version of software to a percentage of patients to see if the new version improved uptake of the drug."

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Scientific journal publisher Sage has retracted key abortion studies cited by anti-abortion groups in a legal case aiming to revoke regulatory approval of the abortion and miscarriage medication, mifepristone—a case that has reached the US Supreme Court, with a hearing scheduled for March 26.

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The chemicals, called phthalates, are used to soften plastic and can be found in thousands of consumer items including plastic containers and wrapping, beauty care products and toys.

Phthalates have been known for decades to be "hormone disruptors" which affect a person's endocrine system and have been previously linked to obesity, heart disease, some cancers and fertility problems.

Because they affect hormones, these chemicals "can precipitate early labor and early birth", lead study author Leonardo Trasande of New York University's Langone Health center says.

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Medicine

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This is a community for medical professionals. Please see the Medical Community Hub for other communities.

Official Lemmy community for /r/Medicine.


!medicine@mander.xyz is a virtual lounge for physicians and other medical professionals from around the world to talk about the latest advances, controversies, ask questions of each other, have a laugh, or share a difficult moment.

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