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this post was submitted on 01 Dec 2024
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I did it over 15 years ago, but for health information before the FDA nuked that. (Although you can still run the raw data through a third party program)
I'm pretty sure I already uploaded myself to at least one open source database, so I don't see any reason to worry that much.
Like honestly, I'd rather be open sourced than sold as proprietary data haha
In either case the actors to worry about (whatever they might be) gets access, in the latter case it might additionally do some good.
The problem is when your data can be connected to you. If you just share it anonymously, it will likely help nobody, except that everyone now knows that some person in the world has this DNA. And has money to get it sequenced.