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[-] dharmacurious@slrpnk.net 2 points 1 day ago

If you don't mind me asking, are you visually impaired? We think my mom may have non-24, but the doctors have said they've never seen it in someone who wasn't legally blind or totally blind. It's been very tough on her in the last ~20 years or so

Also, you said there's decent healthcare in your state. Are you in the US? If so, I'm not sure about proctologists, but there's normally some kind of community GP/PCP clinics in most cities, but my trick has always been finding one in a fairly rural area within an hour or so of the city, and if you can manage to convince them you live in the county, there's normally much better care out there, since they aren't as overwhelmed as they are in the city itself. Not technically legal, I'm sure, but it's always helped me. Free clinics in Metro areas are so overwhelmed and underfunded, but outside the city they're still underfunded and overwhelmed, but not quite as bad, at least in my experience

[-] Uli@sopuli.xyz 2 points 22 hours ago* (last edited 22 hours ago)

Just mild nearsightnedness, not the kind of impairment you would expect to lead to non-24. I think every case is a bit different, and I'm probably not the best person to ask what with my lack of professional diagnosis.

But for me, I think it could have some relation to ADHD. In particular, I tend to "sleep procrastinate". I can lie in bed for hours and hours without feeling tired, because my brain is telling me, "You're not done with your day yet."

Typically this means doing a collection of self-serving things (video games, movies, etc) for the purposes of de-stressing, and hopefully also the life maintenance things I should be doing, including work. And after all of this, I tend to feel like my day is just starting - now that I've gotten all of those things out of the way, I can finally think about the passion projects that might allow me to escape the rat race altogether, and maybe even change the system for the better. For me, it comes down to this doubt as to whether there will be a place for me in the world, come 5 or 10 years from now. The more I feel like I'm "escaping" the system, the less stress I feel in my day, the more complete I feel when it's time to sleep. But it's a work in progress.

So, if I had to guess based on personal experience, I would think there could be some near-constant stressor that has simply always been part of your mom's life, and if that thing were to be addressed (or maybe therapy to figure out what the root even is), the symptoms could lesson. But of course, this is highly specific to my own personal experience (which I am still struggling to understand), and your mom's ailment could be from an entirely different cause. What I have heard from internet research is that it's a lot rarer in sighted people but still definitely does happen. And may have another ailment as the root cause (such as how ADHD can disrupt circadian rhythm in general).

And thanks for the tip on seeking the more rural urgent care facilities. Without being too specific about region, in my area, that would definitely be applicable. Right now, I have no aches or pains, and since prostate stones can be caused by temporary bacteria infections, it's entirely possible it just went away. An ultrasound would definitely be the right move for me though. I'm just hoping that I continue to feel fine until I have good insurance again, just because that seems easiest. I'm lucky to have decent social services where I am should anything truly urgent occur. But it's definitely a good reminder to make health a priority over work when I am employed.

And while a smidge embarrassing, I appreciate being on a small-scale social media network like this where I can randomly discuss my health issues on a meme thread. Have to remind myself that I haven't really discussed my health with anyone as an adult, and it's probably something that men in general could stand to get more used to doing.

this post was submitted on 31 Mar 2025
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