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this post was submitted on 10 Apr 2025
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Yes! Lots of folks with chronic illness find themselves in a limbo where they can't get decent treatment or often precise diagnosis. Crowdsourcing relief has mixed results, but in such circumstances reports of rigorous trial and error with various approaches is sometimes helpful in the absence of the sort of care a lot of Americans now can't even hope for. I know this because I've been there. CIDP here since 2010.