125
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
this post was submitted on 30 Oct 2023
125 points (98.4% liked)
Asklemmy
43944 readers
915 users here now
A loosely moderated place to ask open-ended questions
Search asklemmy ๐
If your post meets the following criteria, it's welcome here!
- Open-ended question
- Not offensive: at this point, we do not have the bandwidth to moderate overtly political discussions. Assume best intent and be excellent to each other.
- Not regarding using or support for Lemmy: context, see the list of support communities and tools for finding communities below
- Not ad nauseam inducing: please make sure it is a question that would be new to most members
- An actual topic of discussion
Looking for support?
Looking for a community?
- Lemmyverse: community search
- sub.rehab: maps old subreddits to fediverse options, marks official as such
- !lemmy411@lemmy.ca: a community for finding communities
~Icon~ ~by~ ~@Double_A@discuss.tchncs.de~
founded 5 years ago
MODERATORS
I hear about this condition a lot. May I ask how it manifests?
@shinigamiookamiryuu It's really unknown how Fibro forms, to be put simply it's your body sending the wrong signals to your brain telling your body it is in pain (This is only one thing in fibro but a big part of it). Sadly there isn't a easy way to test for Fibro, you have to be tested for many other things before you get to the possible diagnosis but as @xmunk mentioned most doctors don't understand it, some don't even think it is an actual thing.
Hypothetically, could dogs be used to diagnose it? I know dogs' smelling ability can detect depression, cancer, and DID. Why not fibro?
@shinigamiookamiryuu I wouldn't say you couldn't but is a strange set of symptoms with things such as our pains as it can be effected by stress, mood, weather or even temperature. A dog could be trained to detect it as well as even help with service dogs but that's a lot of money and research. As well as Fibro is very misunderstood as we aren't even sure how it comes about, Trauma maybe, Born with it, possibly.
Based on your particular description here, a part of me wonders if it can be placed on the same spectrum as multiple sclerosis (something I am all too familiar with). If so, it might definitely help it be understood, as what people know about MS seems like it would serve as a good point reference for fibro.
@shinigamiookamiryuu It does have similar things to MS yes
One theory I've heard where fibro comes from, is that the body is always in fight-or-flight mode (for varying reasons), it never properly switches over to rest-and-digest mode for an extended period.
So, it could be that someone with fibro just smells like someone taking an exam, but like, even in theoretically relaxed situations.
It sounds like a good theory, but according to that theory, where would the pain come from? I don't think I've ever been struggling on certain answers on an exam and suddenly it hits me (excuse the pun, I couldn't resist).
I've basically only watched one video on this (of someone who's supposedly medically trained, has fibro themselves and published a book about fibro), so you know, don't think I'm an expert.
But well, according to this video, one common cause for pain in people with fibro is muscle tension. She said something like, what's normally considered dangerous levels of muscle tension, where you'd actively medicate people in a hospital, that's normal levels for fibros.
Obviously, you won't get muscle tension in an exam, except maybe in your writing hand, because you're not really using your muscles and exams tend to be short enough anyways.
Another suspected cause is that during fight-or-flight, your body releases testosterone, which inhibits, I believe, oxytocin production, which means your body slows down long-term regenerative processes. So, quickly closing up a bleeding wound is on schedule, but making sure your joints are regenerated before the next fight-or-flight situation, that's lower priority while you're supposedly still in a fight-or-flight situation.