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submitted 6 months ago by Daft_ish@lemmy.world to c/asklemmy@lemmy.ml
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[-] Bittersea@lemmy.world 31 points 6 months ago

I've been sick for a really long time, and I finally got diagnosed with Lupus, based on blood labs and symptoms, but the rheumatologist I'd seen was a jerk, so I asked in the reddit Lupus sub if what I'd experienced was OK, or if I should find a new doctor. Well, the mod decided that I didn't really have a diagnosis, because they didn't understand what I'd said, and kept DMing me to tell me that I didn't have Lupus, and shouldn't be receiving treatment for it. I know I shouldn't listen to randos on the internet, especially a Reddit mod, but it made me scared that I wasn't going to finally get the help I so desperately needed.

My doctor has continued to help me, and I'm very thankful that the idiot power-tripping mod was wrong, but it really messed me up for a few weeks, and it still bothers me that someone who runs a support group for a serious illness uses it to try to have power over vulnerable people, just to make themselves feel better. And reddit lets them; you can't block mod-mail, so after asking multiple times to be left alone, I finally got mad and swore at the mod, so they reported me for harassment, and reddit baned my whole account for 3 days, even though it was clear who was being harassed, because it was all there in writing. I have never been back to reddit, and I don't miss it at all.

[-] sudo42@lemmy.world 3 points 6 months ago

Well, the mod decided that I didn’t really have a diagnosis, because they didn’t understand what I’d said, and kept DMing me to tell me that I didn’t have Lupus, and shouldn’t be receiving treatment for it.

Ignore it, if you can. 99% of the people on the internet (and real life, sadly):

  • Don't pay attention enough to understand what you said/asked.
  • Assume that their life experience applies to everyone else on the planet.
  • Have no idea what life is like for everyone else.
[-] Bittersea@lemmy.world 2 points 6 months ago

Thank you, and yes, you're right. That's why I don't post about things that will upset me, I was just desperate for some advice and support for the terrible disease with which I'd just been diagnosed. I (stupidly) assumed I could be relatively safe posting in a sub specifically dedicated to supporting people with a disease, but even the leader of the group can't be reasonable, which is really too bad. I've acclimated to having this disease now, and I'm confident I can get the help I need, so I know I won't be bothered by the opinion of an ignorant internet person anymore. But I'm obviously still bitter enough to complain about it somewhere else lol.

this post was submitted on 20 Apr 2024
120 points (96.9% liked)

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