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This question comes from watching the TV right now, and they're talking about Bruce Willis. I feel bad for him, I really do..

Bruce Willis apparently has what they call Frontotemporal Dementia. That's a tounge twister mouthful for most average people, I can only assume Mr. Willis probably can't even remember the name of his own condition..

Why isn't there a 'patient-friendly' easy to remember name for disorders that literally affect a person's brain and memory?

Like shit, I bet most people wouldn't know what polytetrafluoroethylene is, but they gave everyone a simple name to know it by, teflon.

So, why don't they have simpler terms for brain disorders so the suffering patient might be able to talk to their own doctor privately..?

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[-] TranquilTurbulence@lemmy.zip 3 points 1 week ago

Doctors call it “pharyngitis”, because they need to be specific in their documents. Normal people just call it “sore throat”, because that’s close enough and easy to understand. Same thing should apply to various brain disorders too.

If you aren’t writing to medical professionals, go with whatever description you understand better. It’s going to be easier for everyone involved.

If you’re in America, you should look up the relevant TLA and use that instead. Every American seems to be born with the innate ability to know all of them, so it’s just as good as using the easily understandable two word description.

[-] howrar@lemmy.ca 1 points 1 week ago

The fewer syllables you use, the fewer words you can make. There are too many disorders out there to give them all simple names in an unambiguous way.

[-] over_clox@lemmy.world 0 points 1 week ago* (last edited 1 week ago)

Also, the fewer syllables for people suffering brain/memory issues, the easier it is for them to communicate.

Nobody expects a person with brain problems to remember the entire medical encyclopedia, but it would make it quite a bit easier to shorten the most common brain disorders, where the suffering person might be able to remember and say it on their own.

[-] BussyCat@lemmy.world 1 points 1 week ago

He has dementia which is an easy enough word for most people to be able to say. If you want to know the location of the dementia it’s in the frontotemporal area of the brain. But why that complex word well the front of the brain is called the frontal lobes which is a fairly logical name then the temporal lobe is the part that’s near your temples which is also kind of logical.

Historically medicine has been bad about being less specific with names and instead just naming things after people which while they are easier to say don’t actually describe what’s happening

[-] over_clox@lemmy.world 1 points 1 week ago* (last edited 1 week ago)

Yes, it's easy for most people to say and spell dementia. Except for some of the people actually suffering from brain/memory disorders...

[-] cecilkorik@lemmy.ca 1 points 1 week ago

Is "senile" not simple enough for you? The problem is, it's maligned because its too loosely applied and becomes used as an insult. So it's really a no-win scenario. Make it too simple and it becomes clinically useless and people will throw it around like an insult, make it too complex and it becomes only useful in clinical settings and average people can't remember it. Is there a middle ground? I'm not sure. Alzheimer's and dementia/demented are kind of in the middle, but they both get used inappropriately and are clinically useless, so they end up being a worst of both worlds.

[-] IWW4@lemmy.zip 1 points 1 week ago

That’s a type of dementia.

So the answer the question is they do.

[-] over_clox@lemmy.world 0 points 1 week ago* (last edited 1 week ago)

Yes, I get that. The word dementia itself has 3 syllables, they can't come up with a shorter and easier to remember and speak 2 syllable version?

They shortened polytetrafluoroethylene down to 2 syllables, so why not help those suffering brain disorders and memory issues with simpler terminology?

You ever ask a person suffering Alzheimer's how to actually spell their own condition? They'll probably be either like 'old timers' or just a frustrated 'fuck you'

[-] scarabic@lemmy.world 1 points 1 week ago* (last edited 1 week ago)

Do you have much experience with people with Alzheimer’s? It’s not a question of keeping the spelling simple. They lose their own names. And anyway what is this scenario where any damn thing depends on their ability to spell their clinical condition?

[-] over_clox@lemmy.world 0 points 1 week ago

No, not specifically Alzheimer's anyways.

But for almost the past decade, I've been helping care for people that have had stroke, partly paralyzed, have brain damage, mute and unable to speak from birth, etc.

Thank you for asking though. I actually do have genuine care for disabled people. Even if I'm not a complete expert in the field, I do what I can. They don't have many people actually willing to help.

Does it hurt to think about ways to help better? Like what if something happens, and I can no longer help?

[-] scarabic@lemmy.world 2 points 1 week ago

No it doesn’t hurt. I’m really just trying to answer your question. Why don’t we have better names? Because they’re for the clinicians, who need the terms to be precise, not easy to pronounce. And literally nothing is easy enough for a patient with dementia or Alzheimer’s to remember.

[-] DemBoSain@midwest.social 0 points 1 week ago

They shortened the name of PTFE to Teflon because they wanted to sell it. Once there's a market for frontotemporal dementia it will get a short name too.

[-] over_clox@lemmy.world 0 points 1 week ago* (last edited 1 week ago)

Frontotemporal Dementia...

FD or FTD

Problem solved. /s

Yeah I get the whole marketing strategy thing.. ☹️

[-] XeroxCool@lemmy.world 1 points 1 week ago

Sure, because what we need in medicine is more acronyms to occlude meaning.

[-] over_clox@lemmy.world 0 points 1 week ago

I'm pretty sure that if a patient came in slurring their words and all they could basically remember to say was 'I can't remember much, but my last doctor said I have FTD', then if the acronym was standardized, every doctor would know what they mean.

[-] XeroxCool@lemmy.world 2 points 1 week ago

I can tell you that doctors will not trust the claims of anyone slurring their words. If they can't identify the person and pull up their records, they'll do their own diagnostics.

What problem are you trying to solve? In what instance have you experienced an actual doctor say they wish there was an acronym for everything? Frontotemporal dementia is 3 precise bits of data. Two bits tell you what type of dementia, one bit to tell the majority of doctors this isn't their specialty and just "dementia" is sufficient. And, more importantly, is rooted in Latin - the common root of medical terminology. It's pronunciation carries further across the world than writing.

[-] over_clox@lemmy.world 1 points 1 week ago

No shit, I already stated that most medical terms have Latin roots.

What sane person you know that speaks Latin?

What mentally handicapped people speak Latin?...

[-] ByteJunk@lemmy.world 1 points 1 week ago

Bro has dementia. You could call it the most memorable, epic name ever, and he'd still forget all about it in 10 minutes. It's a fucked up disease.

But as to your gripe with the name, Frontotemporal dementia is a pretty decent name.

Even if you know nothing about medicine, you'll understand it's some type of dementia, and immediately get a very good image of how it affects a patient.

If you're more familiar with medicine and the brain, it will also tell you what regions these specific types of dementia affect, giving you clues as to what brain functions could be most impaired.

Thank god medicine has moved away from eponyms, because Creutzfeldt-Jakob disease, or Binswanger disease, or Fahr disease, are much much worse. If you're not familiar, you'd have no clue if they're a type of dementia or a problem on your anus.

[-] solrize@lemmy.ml 0 points 1 week ago* (last edited 1 week ago)

It gets worse, e.g. aibohphobia (the fear of palindromes). Sufferers can't seek treatment because they're afraid to even say its name.

[-] over_clox@lemmy.world 0 points 1 week ago

Interesting, I wasn't aware of such a condition.

Thank you for sharing 👍

[-] solrize@lemmy.ml 1 points 1 week ago

It's a joke, in case that wasn't obvious.

[-] Rhynoplaz@lemmy.world 1 points 1 week ago

Some of the phobias do have witty names like this, so I believed it. 🤷🏻‍♂️

[-] Berttheduck@lemmy.ml 0 points 1 week ago

This is a big problem with medicine in general. Medicine is unfortunately very much an old white man's club, it's getting better slowly, but all the knowledge and the way it is taught comes from that old white guy standard.

Medical terminology is complex because medicine is complex. There is definitely an element of being part of an exclusive club but there is also communicating lots of information quickly and efficiently.

Frontotemporal dementia describes a specific set of symptoms and if you are medically trained tells you most everything you need to know about what is happening. As opposed to the patient is a bit confused or sees things sometimes which could be many different things.

The language and how diagnoses are communicated are really important, a good medic should tell the patient their diagnosis with the medical words but should explain what those mean in as much detail as the patient wants.

Most patients are able to understand dementia even if the frontotemporal bit doesn't make sense to them.

[-] over_clox@lemmy.world 0 points 1 week ago

Official medical terminology tends to be based off of Latin. How many people do you know that speak Latin?

Benadryl is the consumer friendly name for diphenhydramine hydrochloride. And yes I just pulled those letters out of my ass, I learned long ago that brand name Benadryl is expensive, but far cheaper alternatives exist.

I guess that is sort of the opposite of my thought though, my point is that important things should be easier to remember, especially those with brain/memory issues. Just because I can remember and spell long and complicated words, doesn't mean everyone else can..

[-] paraplu@piefed.social 1 points 1 week ago

You don't need to speak Latin to notice common roots and get a gist for what a term means.

If you're actually in a position where it's useful to distinguish one type of dementia from another, having a meaning that's linked to what the symptoms are may help you remember both name and symptoms.

If you're not a medical professional, remembering either name or symptoms for specific types of dementia is unlikely to be useful.

this post was submitted on 26 Aug 2025
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