[-] AddLemmus@lemmy.ml 21 points 4 months ago

Surprisingly, every-single-time I believe that I will for the rest of my life do the thing on time, incrementally and with no effort. Especially after a long cleaning effort. Sure, of course I will now always do a little bit every day, and the way the place looks now will be how I will always live ...

With treatment, this is finally a reality. And just now I realise how ridiculous the idea was to do it like that before. My brain plans as if it were healthy, it's really weird.

[-] AddLemmus@lemmy.ml 14 points 5 months ago

For me, it actually started working a couple of years ago. E. g. cleaning the apartment feels overwhelming, but when I ask myself "What CAN you do?" - "I can put ONE piece of garbage into the bin." it works.

But I understand that different things work for different people. For my child, this method does not work as well, for others not at all.

[-] AddLemmus@lemmy.ml 18 points 5 months ago

Strongly affected by all 9

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submitted 11 months ago by AddLemmus@lemmy.ml to c/adhd@lemmy.world

So, he said that neither are necessary. Much of it comes from the loss of appetite: The body needs at least as much food as if it were not on stims, possibly even more, especially when the stims help work out more or clean in a frenzy or whatever.

So we have to treat the body as if it were not on stims. Can't rely on intuitive eating, so I have to count the calories. A liquid engineered staple food is easiest to gulp down without any appetite, such as "This is Food" or "Jimmy Joy".

Also, when I did a little workout, I need to have like an apple and take it easy for a moment. I would usually feel the need for both, but on stims, chances are I take the extra endorphins from the workout on top of the dopamine and start a cleaning frenzy. Don't do that anymore.

The important point is to not on a food deficit when it starts to wear off. Otherwise, it goes from 0 to 80 real fast, and then the craving is for unhealthy snacks. Better to have something ready, and not be behind on eating in the first place. Again, engineered staple foods as an emergency option should be around for someone with ADHD anyway, without meds even more than with meds.

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submitted 1 year ago by AddLemmus@lemmy.ml to c/adhd@lemmy.world

Over 6 weeks on Elvanse now, and it's great. It helps with one single symptom only, though: I can just get on a task and see it through, no procrastination, far less pain.

But that's all. I'm just as senile, forgetful, fuzzy; the quality of my work did not improve. I go to a place on a 1 hour trip and forget to pick up the main thing I was there for. I ask everybody what they want to eat, open my laptop to order it, and forget all about it, until the hunger kicks in and I wonder why it's so late and nobody got food.

I appear in meetings on time and well prepared now, but when I open my mouth, it's still letter salad.

Basically I'm this Joe Biden who rushes to the task like the Flash, and then goes full Biden once he gets there, just looking around disoriented.

It FEELS even worse than before, but I think that is because doing more means more error, more senile.

Still, even if it would stay like this, my life would have changed for the better.

But I wonder: This one symptom could be fixed from the short-term "high" which is certain to decrease over time, not from the intended effect on the prefrontal cortex. Just like opioid painkillers helped me with exactly this as a side effect, but only for 3 months.

So we'll see whether stims are right for me in the long run.

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submitted 1 year ago by AddLemmus@lemmy.ml to c/adhd@lemmy.world

I wonder whether that is an ADHD thing or whether I'm also an idiot: When a website has more than 1 clear menu and one content area, I don't get it.

E. g. a site is quite overloaded with distributed buttons for print, profile etc. When I gradually resize it, they suddenly "disappear" and a hamburger menu appears. I just stand there baffled where the buttons went.

Consoles work great for me, though. I have to remember a few commands, look the rest up as needed, and it's no problem.

A HUGE breakthrough for me was when operating systems and applications started this trend that you just type part of what you want and it searches everything for you. Started with OSX Tiger & Windows Vista, iirc. But now they enshittified the start menu with web searches and all sorts of things.

Basically the same as when I stand in the supermarket and can't find an item, even when looking at the correct shelf. Or the expiration date on food. Damn, could we make a law that the expiration date must be at least the same font size and be as prominently placed as the title?

So is it ADHD, or am I also an idiot?

[-] AddLemmus@lemmy.ml 17 points 1 year ago

Yes, weird with the teacher relationships. A kid from my class, strong on the hyperactive side, was really hated by some teachers. One threatened to beat him up in front of the whole class, another (of the super nice relaxed ones) just threw him out with a book to study on his own in the hallway. I suspect that he never did a single line of homework or studying at home, but his test grades were too good to let him fail.

I don't have hyperactivity. The best teacher I had really hated me, because he was all about punctuality, reliability, discipline - totally not my approach to math. His teaching was great, I didn't forget a single lecture to this day, and it allowed me to get all the math course certificates for a STEM field later, although I never finished the degree. A few STEM teaches though realised that my obsession with electronics and programming was really getting somewhere and tried to motivate me to put in the time in related fields, but I never put any work in, and only for computer science was that enough to still ace it.

My own son is even stronger in the extremes. He is barely old enough for his grade, but already has to take math in the grade above. Can't skip, because his reading & writing is just on par (although in two languages). But he is extremely disruptive. His teachers seem like they understand that he puts in the same mental effort to focus and sit still, just with worse results than the average. And they support my suspicion that he has ADHD and should get tested. Well, will probably take 4 - 6 months to get an appointment, and another 4 - 6 months until there is a diagnosis.

[-] AddLemmus@lemmy.ml 19 points 1 year ago

Amazing about the comments is that while a majority seems to "deliver" when the pressure is on, they split 50/50 on whether they feel great during it or suffer greatly, no middle ground.

I'm definitely in the 2nd group. I can get it done if the alternative has horrifying consequences, but it's not a good feeling.

Maybe two things are mixed up, though. One is like a thing where not doing it is horrible, such as vet appointment for the pet, crucial last deadline at work, kid's birthday party. The other is like working in a high stress environment, like a project where everything is on fire and under pressure, it's not about our condition, or an emergency situation like a sinking ship.

I, personally, suffer greatly in the former, but less than the average person in the latter.

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submitted 1 year ago by AddLemmus@lemmy.ml to c/adhd@lemmy.world

I have used Modafinil before occasionally, and it helped quite a bit, but the strong side effects forced me to save it for emergencies.

6 days ago first Elvanse. Within about 30 minutes of the first dose, many problems were gone completely! No mental effort to do what's needed, be it laundry or a subtask at work. It feels like my brain is a little butler whom I can just order around without doing it myself. Many things just happen, e. g. I put garbage in the bin, carry dishes back to the kitchen as I go anyway, without thinking about it. Complete instant fix. Also a constant feeling like a hundred bucks, better than many recreational drugs.

Almost feeling bad when gaming at the end of the day, keeping it brief, doing extra work hours right before bed. The effect has somewhat worn off by then, but the no-effort-to-do-things is still there.

I always did feel better when checking things off my todo-list, even untreated, but now I get a lot more done, since there is no pain to just do it.

I can also work out until the body just physically gives in; there is no mental barrier to fight like "ONE MORE REP!!!". It might have been a mistake to exploit that in the first few days, leading to exhaustion and more difficulty to judge the right dose / side effects. When I saw someone who was very buff, I used to think: He may not look like it, but he has fantastic discipline, focus and willpower. Now I wonder if some of these people are just normal, lol

This is a completely different life, and slightly better than Modafinil! I am a little worried about when the effect wears off and I need a break, but I've been there before: A lot can get done with just about 50 "super-days" per year.

What did not improve one bit is my forgetfulness and other cognitive problems. Just as stupid as before, e. g. packing a suitcase, putting things next to it to stash something else and then forgetting them. Leaving my phone in insane places. Barely able to use the self-checkout at a supermarket. It's always an adventure, looking confused between the card screen and the items screen, often needing an employee, forgetting my card there and not realising before the next day etc. Problems with web UIs & pop-ups. That's what my GP wanted checked out 1 1/2 years ago, but no appointments.

[-] AddLemmus@lemmy.ml 23 points 1 year ago

I noticed that I can be a bad friend, at times. Need to unload for hours, too impatient to listen, and when I do it out of politeness, I won't pay attention.

With some friends, I suspect that they just have the pity to be like ChatGPT, like "That's so relatable!", "Wow, that IS an interesting day you had there!", "So funny! Glad I missed South Park to listen to your much funnier ramblings!"

At times, I had a like-minded friend, and we would just take turns talking for roughly the same duration, like an unspoken agreement.

[-] AddLemmus@lemmy.ml 15 points 1 year ago

When that happens, I do manage to finish the sentence by appending grammatically correct tokens, like an LLM, though

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submitted 1 year ago by AddLemmus@lemmy.ml to c/adhd@lemmy.world

As suggested myself and encouraged by the doc, I'll take a fraction of a normal dose to check it out first. He signed off on any dose that is lower than the one he prescribed (30 mg in the morning), and the capsules are intended for opening and dissolving in liquid.

So, I'm very sensitive. Low dose opioids for a cough give me euphoria, and when I tried Modafinil, 1/4 of a pill (2 pills is normal!) turned out to be just right for me.

On one hand, I could really use the full productivity boost tomorrow, which would mean trying 1/4 of 30 mg, 7.5 mg. On the other hand, safer would be 1/8th again as it was with Modafinil. Then again, 1/4 of the Modafinil dose was "bearable", it was not intense suffering.

Trying 1/8th in the morning and another 1/8th at noon if the effect is really as low as a cup of coffee could also be an option, with the risk of losing sleep. I tend towards that option.

Some of the worst hours of my life were on the minimum dose Venlafaxine (and many report that), so I'm careful.

What do you think? Doing the super-low 1/10th test at 4 pm would still take away my sleep, right?

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submitted 1 year ago by AddLemmus@lemmy.ml to c/adhd@lemmy.world

After waiting for many years, I thought I've been at least on track to get treatment for the past 6 months. All out of pocket, in addition to the nearly EUR 1000 health insurance premium per month.

Lengthy psychologist sessions, official diagnosis by a licensed therapist in writing. Doctor appointment with the written diagnosis, but he said only a licensed psychiatrist can do the initial prescription. Find one, make appointment.

But then he needed up to date blood count and ECG first, appointment cancelled 2 hours before it started. The blood count was at a different doctor than my usual one, because last time, mine was on vacation. So ECG and blood count from two different locations. All during hours I actually had to be at work. But what can I do - botch one last job before I get treatment and everything will be great for the future, right?

Sent it all in upfront, and another problem: Apparently, the ECG must be evaluated for findings. Which any doctor is trained to do, but it needs to be returned to the doctor who did it, like this magic quest, because in theory, I could send an ECG that is not mine to a different doctor for the findings. (Cui bono?)

The last 4 steps, I've been told that this is "this one really really really last thing", and it sounds like one of these advance fee scams that are like "just one more Apple gift card for the taxes, and we can transfer your lottery winnings".

I bet all of these things would be easy for somebody who does NOT have ADHD. They just do them one by one, and somehow that happens at a magic hour where the doctor office is open but also their workplace is not.

The lack of understanding how ADHD works, by the very people who are supposed to diagnose and treat it, reminds me of this scene from Groundhog Day: He explains the problem of being in a 24 hour time loop to a seemingly understanding therapist, who then is like: "I understand completely, come back in 3 days for a solution!" Ah, here it is: https://www.youtube.com/watch?v=XFdwLNiZq7M

[-] AddLemmus@lemmy.ml 23 points 1 year ago

Exact same story down to every detail. Both parents teachers, but no clue. The weirdest conclusions and theories about me. Like: Far below average intelligence, but with a talent for languages and mathematics (is that even a thing?), which got me through school with effortless Cs. Most of the time I (and probably others) thought I was just a general shithead.

I realised what it was 4 years ago and told a psychiatrist, who did not disagree, but was like: woa, hold your horses. Got a referral to a full neurological & psychiatric check-up from my GP, who wrote on the referral that he suspects ADD without hyperactivity, 1 1/2 years ago. Couldn't use it, because they are overrun by more urgent cases.

Started paying out of pocked to a private clinic 6 months ago and got the official, written diagnosis 1 month ago (exactly what my GP already suspected). Since then, lots of delays to get treatment. No appointments, then appointment available, but latest bloodwork and ECG expired etc. Had one appointment last week cancelled 2 hours before start.

Honestly, with a medical system so overrun, a GP should just be authorised to do the diagnostic if supported by purely computer evaluated multiple choice test. The standardized tests appear to be the foundation anyway, and the many hours of additional psychiatric evaluation are just something that the medical system can't support.

And yes, now my child. He is a true math genius who could do 2 or 3 classes above his own, but he hates books (only since school, not before!) and his reading & writing is just a hateful, effortless B. In two languages equally well, though. I suspect something is up there, but don't want to project. I never had problems understanding math, but was certainly not ahead of the class. Loved books though, perfect spelling.

Let's hope things work out for us and our children!

[-] AddLemmus@lemmy.ml 16 points 1 year ago

It happens, even with popular kids. A friend from daycare invited many people for her 5th, but due to bad timing with vacation, nobody showed up. Nobody. Her 6th was fine, as about 8 out of 14 came.

My son invited 5 for his 5th, but due to some misfortune with sickness etc., only two siblings came. It turned out to be one of his best birthdays ever.

Best to ask for a commitment, a clear yes or no. But in your case, 5 is a good number for a party! 1 or 0 would have been kind of awkward.

[-] AddLemmus@lemmy.ml 15 points 1 year ago

The biggest issue was that when I was in a phase where I pursued something worthwhile, such as a science project, electronics, programming, they stopped me and said I obsessed too much over it, took it away, said I needed to focus more on something else. Which then did not stick, as it was forced, of course.

That's exactly the kind of obsession that leads to success, though, and it took me years to recover after moving out. Wish I had those skills I wanted to get in all those areas, but I had to focus on one thing at that point, as the end of my 20s was approaching.

Also when they forced me to do something like "clean your room, immediately, until it is done". With the tools at hand now, I know that I have to talk to myself like "in 20 minutes, set a 15 minute timer and get as much done as you can" or "pick one aspect (garbage, floor, desk) and do that immediately". Or with homework: I know now that one tool I needed was to set everything up at the desk ready to start to get over that first step. An order like "all homework needs to be done immediately to perfection" does not work.

With my own child, the problem is that I don't know who he really is down to the core. Is "10 minutes of cleaning on a stopwatch before dinner" just the right push, or too much sometimes, or too little?

I think a little push is right, to yourself and to your children, but it needs to be a "relative push", depending on the person, the day etc. Some days, just staying in bed and crying is already the best you can do. At our best, we might be capable of doing 10 hours focussed tasks and just need a little "come on, do it". Which of those is it? That's the question. I find that meditation helps best to get a feeling for that. Sometimes, I just need a nap and didn't realise, and that's why it felt like the world is ending.

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Scumbag Monday (lemmy.ml)
[-] AddLemmus@lemmy.ml 14 points 1 year ago

I think it should be relative to the person's abilities. 8 hours of work, laundry, 50 minutes focussed studying, healthy dinner, remembering aunt's birthday and bedtime at 10 might seem reasonable to most. Some with ADHD might also pull it off. For others, their best is to do one of those things after work.

Different people, good and bad days. Absolute measure & judgement for everybody is the problem.

[-] AddLemmus@lemmy.ml 17 points 1 year ago

Yes, apparently they can do a lot with that information. I'm not sure what to say though. Coffee can make me really tired, or extremely stimulated like a cartoon squirrel.

296

The only thing that really works for me is when I make it a 25 minute hyper-focussed challenge: Set a timer and make the maximum progress that is theoretically possible in that time. No getting water, no toilet breaks, no looking at the phone. Beats 3 hours of getting a glass of water, toilet breaks, getting hungry, realising I should work out and shower first and finding more reasons to jump up any day - surprisingly. Got to always treat it as if it were a competition.

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AddLemmus

joined 1 year ago