86
submitted 10 months ago* (last edited 10 months ago) by breeze@lemdro.id to c/privacy@lemmy.ml

(edit: removed redundant rants and added updates)

I recently got diagnosed with a condition (sleep apnea) which means I need to use a machine (CPAP) to have a proper sleep, probably for the rest of my life. The doctor wanted me use the device for a few months, and bring the "report" generated by the device to monitor my progress and discuss further treatment.

I thought it would be a simple task, like using a program or accessing a local network service like a printer would and download a file. However, as I consulted to the device distributors in my area... their sales pitch (disregarding the actual medical functions) were:

A) The machine is constantly connected via wi-fi or cellular to manufacturer's server, and user downloads the report via manufacturer's website or an app.

B) The machine has an SD card slot to which data is copied, but user have to bring its contents to the authorized distributor so they can convert them into a report file.

TL;DR: Very unsatisfied with either options. I never asked for this.

Update #1: For the reports, there's a program called OSCAR (www.sleepfiles.com/OSCAR/) that supports conversion of SD card data. Check device compatibility first. For sleep apnea related discussion, there is a forum (www.apneaboard.com) dedicated to it.

Update #2: From all the available brands, I'm inclined to buy a Chinese brand (Yuwell) simply because of costs alone, even if it is not supported by OSCAR. I see a lot of people recommending ResMed (which has OSCAR support) both online and offline, but the cost is prohibitively expensive for someone in my financial situation with local market prices. Still have to think about it.

Update #3: There's an asshole in the comments arguing "what's so special" about sleep related statistics being copied around. I concern was how those statistics get associated with customer identification (metadata) as distributors often do. Anyways, won't waste my time with the "got nothing to hide" type of dumbfucks.

you are viewing a single comment's thread
view the rest of the comments
[-] WarmSoda@lemm.ee -5 points 10 months ago

CPAP machines only do one thing.

[-] rar@discuss.online 2 points 10 months ago

I get your message, but I was not referring to the machine. I was referring that the what kind of data logged by the machine didn't matter in the context of privacy.

[-] WarmSoda@lemm.ee -5 points 10 months ago* (last edited 10 months ago)

The kind of data logged by the machine is how often they stop breathing, and how long they sleep. That's literally all it does.

You can't be concerned about the data it transmits and also say the data it transmits doesn't matter in the context.

[-] breeze@lemdro.id 2 points 10 months ago

It's not the collected data itself that's the problem you dipshit. Don't you know that distributors often make customers sign contracts at lease or purchase for warranty and tie that customer data along with statistics? You must be fun at parties.

[-] WarmSoda@lemm.ee -4 points 10 months ago

I am fun at parties. I actually go to them. And I don't worry about things like how much my freaking CPAP machine is spying on me lmao

[-] breeze@lemdro.id 2 points 10 months ago

No sense talking to a chatbot taking things literally at face value.

[-] WarmSoda@lemm.ee -2 points 10 months ago

That's true, I agree. Not sure what that has to do with anything here but ok.

load more comments (2 replies)
load more comments (2 replies)
load more comments (2 replies)
this post was submitted on 11 Jan 2024
86 points (93.0% liked)

Privacy

31978 readers
287 users here now

A place to discuss privacy and freedom in the digital world.

Privacy has become a very important issue in modern society, with companies and governments constantly abusing their power, more and more people are waking up to the importance of digital privacy.

In this community everyone is welcome to post links and discuss topics related to privacy.

Some Rules

Related communities

Chat rooms

much thanks to @gary_host_laptop for the logo design :)

founded 5 years ago
MODERATORS