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submitted 1 day ago* (last edited 1 day ago) by simontherockjohnson@lemmy.ml to c/neurodiverse@hexbear.net

I fucking hate these people so much.

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[-] AstroStelar@hexbear.net 14 points 17 hours ago

"Finally" our turn? I thought we were one of the first...

[-] VHS@hexbear.net 49 points 21 hours ago* (last edited 21 hours ago)

the reality and pain of a subset of parents of children with autism who feel left out of much of the conversation around the condition.

If anything they are always dominating the conversation despite being in the minority of autism cases. I understand it's hard for them, but it's not all about you and you're talking over autistic adults who should be heard more.

[-] Pentacat@hexbear.net 36 points 21 hours ago

They’re always talking over their children. Makes sense to ignore everyone who has lived experience with autism in favor of parents getting over the narcissistic wounding that came with having a kid that didn’t fit their fantasy.

[-] BeamBrain@hexbear.net 24 points 20 hours ago

Starting to think that narcissistic parents are way more common than anyone wants to admit.

[-] Bishop_Owl@hexbear.net 7 points 14 hours ago

Yeah I'd say it makes sense that people who are not narcissists would have less interest in creating genetic copies of themselves. I'd be willing to bet that if we had the option of cloning, it would be the more popular one.

[-] Le_Wokisme@hexbear.net 20 points 20 hours ago

If anything they are always dominating the conversation despite being in the minority of autism cases. I understand it's hard for them, but it's not all about you and you're talking over autistic adults who should be heard more.

we had a nonverbal kid on the school bus one year and it was really cool of his parents and the school system to abuse that kid and by extension everyone else on the bus route on top of school starting too damn early in the morning. I'm not even sure if low-support adults are able to be effective advocates for the kids who have it the worst.

[-] VHS@hexbear.net 20 points 19 hours ago

Someone does need to advocate for them, I don't think their parents are qualified either. "Autism parents" seem so arrogant and self-centered

[-] Le_Wokisme@hexbear.net 15 points 18 hours ago

for sure i'm just aware our needs are quite different and part of the problem is not being able to ask

[-] Zuzak@hexbear.net 26 points 20 hours ago

It's Journalism's Sacred Duty To Endanger The Lives Of As Many ~~Trans~~ Autistic People As Possible.

[-] blame@hexbear.net 29 points 21 hours ago

The NYT really loves letting the worst people have op-eds dont they

[-] JoeByeThen@hexbear.net 3 points 10 hours ago

They've been known to request them.

[-] Frogmanfromlake@hexbear.net 12 points 18 hours ago

This is the type of person who complains about wheelchair ramps or parks in handicapped parking spaces.

[-] Dirt_Owl@hexbear.net 63 points 1 day ago

Disgusting article

We have moved from viewing disability through a purely medical lens — as something broken to be fixed — to a social lens that puts the onus on society to accommodate it.

Ah yes, viewing disability as a problem to be fixed is very medical and rational and totally not based entirely on how your society is structured. I am very smart. It's not like someone with disabilities could ever be anything but a burden no matter how much society accommodates them, right? Stephen Hawking? Who's that?

I consider myself squarely left of center.

And yet, I think his remarks echo the reality and pain of a subset of parents of children with autism who feel left out of much of the conversation around the condition. Many advocacy groups focus so much on acceptance, inclusion and celebrating neurodiversity that it can feel as if they are avoiding uncomfortable truths about children like mine.

Once again we see how poisoning political definitions has created a reality where people believe they can call themselves left while believing textbook harmful right-wing ideology.

A Harvard-affiliated research center halted a panel on autism awareness in 2022, after students claimed that the panel’s language about treating autism was “toxic.” A student petition circulated on Change.org said that autism “is not an illness or disease and, most importantly, it is not inherently negative.”

"I, a NYT writer, know more about Autism than the people who fucking research it for a living. I am very smart and believe in science."

I understand why Mr. Kennedy is such a polarizing figure. I did not support his cabinet appointment, and I don’t believe his platform will materially help families like mine. I think his policies are likely to harm. I don’t think he was the right person to make those comments. But I was struck by his willingness to speak frankly about the painful parts of my child’s life. I don’t care if my child ever pays taxes — but I do care that she may never have the opportunity to work or live independently. She did not destroy my family, but I live in constant fear for her safety. I care deeply about her quality of life, and the limited options ahead. I appreciated his acknowledgment, because most of the time, families like mine are invisible.

The "center-leftist" siding with a literal Nazi and not realising the only reason he's acknowledging them is to dehumanise them.

My daughter turns 7 next month. I’ve long accepted that I may never hear her call me mom. I have grieved a million tiny deaths of the things I once assumed would be.

And there we have it, it's not about her child, it's about her. She became a parent because she wanted a "normal child" and now selfishly feels entitled to a "normal child" so she can fit in with societal expectations. The child is a mark of social progression to her, like a car or a home. When you have a child you shouldn't assume they will be anything you expected, they are an independent life that you are devoting yourself to ensuring their best life, not a pet.

[-] quarrk@hexbear.net 11 points 15 hours ago

Ah yes, viewing disability as a problem to be fixed is very medical and rational and totally not based entirely on how your society is structured.

100-com

[-] Salem@hexbear.net 11 points 16 hours ago* (last edited 16 hours ago)

That last paragraph you wrote reminded of that page from Flowers for Algernon, where the father defends his son Charlie from his mother.

Matt - the father - loved his son and accepted him regardless of his disabilities.

We should all be grateful we are not divorced from love, even if just as a concept of it, as Emily May is.

[-] VILenin@hexbear.net 29 points 21 hours ago

We have moved from viewing disability through a purely medical lens — as something broken to be fixed — to a social lens that puts the onus on society to accommodate it.

Neurotypical fascist whining about having to put up with the uppity autistics, example 99472772874.

The worst part is this isn’t some fascist hardliner anomaly view, but the opinion of the average neurotypical. I could count the number of neurotypicals I’ve met who wouldn’t put the neurodiverse “burdens” on flights to El Salvador on one hand. When Trump starts doing just that, I’ll expect nothing short of celebration from the average person, whether or not they openly do so. Sick and diseased society

[-] Dirt_Owl@hexbear.net 18 points 21 hours ago

Yeah it's wild that people call call themselves "center left" and then go on to say some eugenics ass shit.

[-] BeamBrain@hexbear.net 14 points 20 hours ago

Really Existing Fascism remains an evergreen read.

[-] BelieveRevolt@hexbear.net 41 points 1 day ago

I don’t care if my child ever pays taxes — but I do care that she may never have the opportunity to work or live independently. She did not destroy my family, but I live in constant fear for her safety. I care deeply about her quality of life, and the limited options ahead.

”Does the society we live in have a role in this? No, it's my child who is wrong.”

[-] BountifulEggnog@hexbear.net 40 points 1 day ago

So many parents view having a "normal" child as their right. "Oh but I spent so long fantasizing about this, how could it not come true?".

[-] VILenin@hexbear.net 26 points 21 hours ago

There isn’t a vat of boiling acid hot enough to drown this person in

[-] Dessa@hexbear.net 42 points 23 hours ago

When Robert F. Kennedy Jr. said in a recent press briefing that autistic children will “never pay taxes,” “never hold a job,”

How terrible that must be

[-] robot_dog_with_gun@hexbear.net 18 points 22 hours ago

yeah i love not being able to participate in society

[-] Dessa@hexbear.net 38 points 22 hours ago

Robert Kennedy is more concerned with how much a worker can be exploited

[-] vegeta1@hexbear.net 44 points 23 hours ago

Didn't take much for the "left of centrist" to side with fascist shit.

[-] LaGG_3@hexbear.net 13 points 15 hours ago

"I'm left of center, but..." hitler-detector

[-] VILenin@hexbear.net 26 points 21 hours ago* (last edited 21 hours ago)

If Adolf Hitler were alive today, he’d call himself a progressive leftist.

[-] Lamprey@hexbear.net 28 points 21 hours ago* (last edited 21 hours ago)

That was sorta the schtick with the national socialists right?

[-] Florn@hexbear.net 22 points 21 hours ago

Progressive Patriotism

[-] keepcarrot@hexbear.net 21 points 21 hours ago

"Why I left the left"

[-] BeamBrain@hexbear.net 29 points 22 hours ago

Libs continue to prove Papa Stalin right about social democracy

[-] TrustedFeline@hexbear.net 44 points 23 hours ago

I have no interest in defending Mr. Kennedy, whose shaky science and conspiracy theories will do nothing to benefit those with autism and their families.

And yet...

[-] Acute_Engles@hexbear.net 64 points 1 day ago

I live in terror of the day she outgrows cute, and I worry constantly that as she grows bigger, her world grows

What the fuck

[-] BountifulEggnog@hexbear.net 56 points 1 day ago

When she isn't cute I don't want her anymore

[-] keepcarrot@hexbear.net 26 points 21 hours ago

My general disgust towards parents who seem to think the most important thing their kids could do is have grandkids

[-] noctivius@lemm.ee 40 points 23 hours ago

If I had such parent I wouldn't speak either

[-] Enjoyer_of_Games@hexbear.net 47 points 1 day ago

oh yeah it's consent manufacturing time

[-] dil@hexbear.net 5 points 10 hours ago

Yeah I only made it through the first few paragraphs before it became clear this was antivax propaganda.

"I asked why she regressed, doctor says it's common"

"RFK Jr says..."

"I got her vaccinated"

Just right in a row.

So gross.

[-] buckykat@hexbear.net 44 points 1 day ago

Whenever a ghoul proposes doing the most evil thing possible the NYT will be there to publish an article about how it's good actually

[-] BountifulEggnog@hexbear.net 49 points 1 day ago

parents of children with autism who feel left out of much of the conversation around the condition.

Oh yea, totally. The parents of autistic children are hardly ever heard from 🙄

We have moved from viewing disability through a purely medical lens — as something broken to be fixed

YOU CAN'T FIX IT!! god, why do people think if you invest enough tech points in an issue anything is possible? Just completely treat it as magic. I hate this attitude and it is so pervasive. You see people calling for conversion therapy with language like this too. Lots of disabilities are just- not fixable.

There’s a resistance to parents who wish their children were less disabled

I- I think everyone wishes your child was less disabled.

[-] Hohsia@hexbear.net 16 points 21 hours ago

Jesus fucking Christ it’s always the Godamn parents

[-] TheSpectreOfGay@hexbear.net 39 points 1 day ago

ugh, ew

i wish these people would question why the inability to hold a job and pay taxes is what makes someone considered worthless

[-] BeamBrain@hexbear.net 40 points 1 day ago

Yet another example of how the logic of capitalism leads inexorably to fascism.

[-] Llituro@hexbear.net 35 points 1 day ago

Parents are encouraged not to use words like “severe,” “profound,” or even “Level 3” to describe our child’s autism

yeah, i wonder why. what a fucking nightmare this person is, i feel bad for her daughter. i like pokemon, i'm not literally a pokemon. when we say this shit has levels to it, i don't think ranking and numbering them is what anyone meant.

[-] FishLake@lemmygrad.ml 34 points 1 day ago

Maybe, just maybe, laypeople shouldn’t use the same clinical and/or medicalized language used by professionals who know what the hell they’re talking about to describe their own children.

Same energy as the parents I was talking to a few months ago saying they have a “male son.” Oh okay, I thought this was a parent-teacher conference, but apparently I’m speaking to a couple zoologists.

[-] ThermonuclearEgg@hexbear.net 5 points 14 hours ago

saying they have a “male son.”

makes me wonder what it would mean to have a "female son"

[-] Le_Wokisme@hexbear.net 6 points 12 hours ago

pretty sure i've heard boomers say that about having a daughter into sports and fixing old cars.

[-] Awoo@hexbear.net 17 points 22 hours ago

Someone wanna fill me in on what else the Kennedy ghoul said that must be so controversial it's not included in this article?

[-] simontherockjohnson@lemmy.ml 15 points 21 hours ago* (last edited 21 hours ago)
[-] Awoo@hexbear.net 12 points 20 hours ago

[ redacted ]

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this post was submitted on 26 Apr 2025
76 points (98.7% liked)

neurodiverse

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