22
submitted 1 week ago by PugJesus@lemmy.world to c/adhd@lemmy.world

I open a comm to post, and I forget what fucking comm I'm in and have to double check so I know what to look for - sometimes two or three times. Immensely irritating. This is how I've operated most of my life, but it's especially frustrating now that I know it's not how it has to fucking be. Flowers for Algernon over here.

Fucking American healthcare. "At least we're not Canada, you might have to wait for important care!" The fuck am I doing right now, then?

top 22 comments
sorted by: hot top controversial new old
[-] Broadfern@lemmy.world 5 points 1 week ago

I’m sorry, that sucks. I know that feeling all too well.

US healthcare system is atrocious and more often than not these shortages (if that’s what it is) are due to arbitrary quotas by puritanical assholes treating us like addicts.

Sending some gentle vibes your way while you deal with this frustration, and hopefully you can get your meds back soon.

[-] 18107@aussie.zone 4 points 1 week ago* (last edited 1 week ago)

The first few days after stopping meds will be the worst as your body adjusts. Things will get better gradually.

It won't be as good as when you're taking the medication, but things won't stay this bad forever.

Coffee and other similar stimulants can help make the wait a little more bearable.

[-] PugJesus@lemmy.world 4 points 1 week ago

I'm running on three weeks now.

[-] 18107@aussie.zone 4 points 1 week ago

:(

I feel your pain. I hope you find some relief soon.

[-] AddLemmus@lemmy.ml 2 points 1 week ago

Got to make a stash over time. But I get it; it's not exactly the kind of thing we excel at.

Germany here, and I just learned that for the past month, my kid did actually not do so great at school, after his meds (Medikinet removed) were unavailable and he got a generic one with a completely different extended-release profile. Decided by pharmacist against doctor's orders. Can't believe it! Health insurance is EUR/USD 1100 per month here, and you're not allowed to quit. Least I can expect is that he gets the 40 cents / day meds that help, after waiting a year to get diagnosed and treated!

[-] Lumidaub@feddit.org 1 points 1 week ago

If you don't mind me asking: How did you manage to be required to pay that much for your health insurance? That seems unreasonable (unless you're pretty well off).

Also, if Medikinet isn't available where you are, what's your pharmacist to do? They didn't just decide on a whim to give your son some other med and they'll have told you the reasons.

[-] AddLemmus@lemmy.ml 1 points 1 week ago

It's 17% of income, capped at 1.1k, including nursing care insurance. So it sounds like you need to make good money, before you even reach the 1.1k. But the problem is that you can't write off a lot here. E. g. I pay for my own meds, doctor and therapy entirely out of pocked, since I can't get appointments in my insurance network, which is an additional 600 per month. And that is not a write-off, so it doesn't reduce taxes or the 1.1k insurance. Also, you can get unlucky with other things. I have a child, but they said there was a formal error with the city-run daycare receipt, so they counted daycare costs at 0 for calculating taxes.

So what I expect is that they move heaven and hell to make the 40 cent pill for my son available, even on a health ministry level.

[-] Lumidaub@feddit.org 1 points 1 week ago

I'm German, I know the system. I'm going to be honest, I have no idea what you're saying. Why do you have to pay for your own meds? "Insurance network"? Does your insurance company only allow certain doctors (change to a different company then, that sounds stupid as fuck)? I would assume they'd be obligated to either make sure you can get appointments or reimburse you. If there was an error in your Steuerbescheid, why wouldn't you go back and ask for a revaluation using the correct figures?

I haven't had any problems getting my Medikinet, ever, so I'm baffled at what happened there. Try a different pharmacy I suppose?

Sorry, I'm generally confused about your entire situation.

[-] morbidcactus@lemmy.ca 1 points 1 week ago

I survived pre-diagnosis by heavy amounts of caffeine (which never did much for me) and judicious journalling, externalising thoughts does totally work for some people and at the least you'll have a reference as to what you're doing to come back to. I keep up the habit even on meds, helps on the days I accidentally forget a pill or late calling in a renewal (it's really irritating I have to call every 60 days BTW, no refills for stims apparently)

[-] Etterra@discuss.online 0 points 1 week ago

Then how fast did you write your post, OP?

[-] PugJesus@lemmy.world 1 points 1 week ago

Pretty fast. As long as I can keep the thought going, things are mostly okay. When I have to stop to sort through something or search through unrelated material, like my image folders, I lose what I was doing fast.

[-] n3cr0@lemmy.world -3 points 1 week ago

Maybe find a strategy that works without stimulants. You made yourself dependant to the failing healthcare and the greedy pharma industry. Now you feel it, they let you down.

[-] Pxtl@lemmy.ca 2 points 1 week ago

I can't speak for op but I tried that for 40 years Take the meds.

[-] Lumidaub@feddit.org 2 points 1 week ago

You may not mean it that way but still: would you say the same thing to a person with diabetes?

[-] bunitor@lemmy.eco.br 2 points 1 week ago

you sound like a coworker of mine that said he doesn't go to the ophthalmologist bc glasses are a scam

[-] RipLemmDotEE@lemmy.today 2 points 1 week ago

You strike me as real piece of shit.

[-] partial_accumen@lemmy.world 2 points 1 week ago

You made yourself dependant to the failing healthcare and the greedy pharma industry.

Are advocating for NOT using healthcare for a healthcare need?

[-] spankmonkey@lemmy.world 2 points 1 week ago

Maybe you should go fuck yourself.

[-] MrPoopyButthole@lemmy.world 2 points 1 week ago

This kind of opinion isn't welcome in here

[-] PugJesus@lemmy.world 1 points 1 week ago

I'm really fighting the urge for some very unkind comments in response to this.

[-] Pxtl@lemmy.ca 0 points 1 week ago

Best to just down vote and move on.

[-] AngryCommieKender@lemmy.world 1 points 1 week ago

Victim blame much?

this post was submitted on 21 Jul 2025
22 points (100.0% liked)

ADHD

11697 readers
99 users here now

A casual community for people with ADHD

Values:

Acceptance, Openness, Understanding, Equality, Reciprocity.

Rules:

Encouraged:

Relevant Lemmy communities:

Autism

ADHD Memes

Bipolar Disorder

Therapy

Mental Health

Neurodivergent Life Hacks

lemmy.world/c/adhd will happily promote other ND communities as long as said communities demonstrate that they share our values.

founded 2 years ago
MODERATORS